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Old 10-01-2006, 10:58 AM
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Glaucoma-It can affect anyone at any age

I was diagnosed with Glaucoma just over a year ago,though the optometrist knew 2 years before telling me.During this past year I have done all the eye drops from Travatan,Lumigan,Alphagan and finally Brimonidine.With the Brimonidine my eyes looked like they were bleeding,with the Travatan I suffered through severe depression,with the Lumigan it was insomnia,and the Alphagan I suffered permanent muscle deterioration in my right arm.I did everything the doctor and specialist told me to do,and still I am going blind.

The last option for me was Laser surgery,now the thought of someone putting holes in the iris and shooting 100 lasers into that did not appeal to me at all,especially since I would be awake during this,though the eye would be frozen,that would be okay if I could take the freezing,I am one of the lucky ones where freezing does not affect them.And so no surgery for me,the doctor will not sedate me for the surgery.So here I am trying to come to terms with losing my eyesight,I think I have done well with all that has happened to me in this life.

My husband has had a really hard time coming to terms with this,though he has gotten alot better since he injured his eye and told me "now I know what you go through everyday",thankfully his eye has healed without surgery,but how quickly being able to see can change in a heart beat.Seeing the simpliest things in life are a joy,seeing a smile,seeing someone laughing,seeing the faces of your children and grandchildren are truly a blessing and something that should never be taken for granted.

Things I have seen,people I have met,my childrens faces,my grandchildren's faces,the sunsets,the changing of the seasons are things I will always be able to see.

Thankfully I have some wonderful programs on my computer so I can still feel independent and can still enjoy meeting people from all over the world.

So on that note,Please have your eyes checked regularly.Take care everyone and enjoy every minute of everyday!!!
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Old 10-13-2006, 09:47 AM
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Theresa

I am so sorry to hear this and you are right about it striking at any age. My nephew who is 5 was diagnosed with Glacoma last year, he will always have difficulty studying, will never be able to play sports or drive a car. He is getting special help now though so he can try to lead a normal life.

Anna
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Old 10-13-2006, 05:19 PM
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Theresa....Sorry to hear about your eyes. Do you have glacoma in both eyes?
I too have problems with my eyes. Had a detached retina in my left eye ten years ago that they could not fix even with three surgeries. I too went to the Dr. regularly but he was not a retina specialist and did not tell me what he was observering before it happened. When it happened he sent me to one of his friends instead of a specialist in town. I have come to terms with my handicap and enjoy the computer it has been a blessing.
I know what you are going thru.
Your Friend.....Sueanne
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Old 10-14-2006, 12:08 PM
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Hi

I have been diagnosed with glaucoma for 5-6 yrs. now. My mom had it too.I take Xalatan and have had no side effects from it or any loss of vision.The main side effects is turning your eyes brown which mine are already. I don't know if you have tried this medicine or another one similar yet.I have a great optomologist who I see two times a year to monitor my condition. I hope this helps you.

Gloria
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Old 10-16-2006, 11:48 AM
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My optometrist waited 2 years before he even told me I had glaucoma in both eyes.I have tried all the drops and the only thing is I have suffered with the side effects,I have muscle deterioration in my right arm,which kind of bummed me out because I am right handed,so it does limit me to what I can do.I have had to give up alot but I am doing okay.

My IOP is in the high numbers and not showing any signs of coming down.

Anna,I am so sorry about your nephew,he is in my thoughts and prayers.

Sueanne,thank you for sharing with me.I do not have a good doctor at all,he waited 2 years before telling me,why maybe he thought it would just go away.You are in my thoughts and prayers.

Gloria,thank you for sharing with me.I see my doctor every 3 months,I have to sit in a darkened room because I have become light sensitive.I have tried all the drops that the doctors prescribed and through some very painful side effects nothing has worked so far.You are one of the very lucky ones,I think if the doctor had told me when he first knew I would have had a better chance of beating this.

Enjoy every minute of everyday.
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Old 10-16-2006, 12:00 PM
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Theresa

I hope they can find some solution for you or at least get you started with a program to help better prepare you for the possibility of blindness.

My nephew ( he's pictured in the first photo of our home improvement project page btw) in some ways I guess it's a blessing that he was born with it and not something that he had to get used to. They didn't know till last year that he had it. He's adjusting well to it I think because he's never known anything else. Later years will be more difficult when we have to explain about the sports and driving but God willing, by then things will have improved.

Anna
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Old 10-16-2006, 08:27 PM
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Anna thank you for telling me this.I too hope that in the future things will be a lot easier for your nephew.Its hard when he is so young,but as you say he is adjusting to it.It took me a while to come to terms with it but I think I finally have.

A friend once told me "God only gives you what you can handle" very true,we are all given things that we need to handle and to me going blind is one more thing to handle.
When I was first diagnosed I would crack jokes at my own expense,a defence mechanism or so I am told.I cried,I laughed,I yelled and I even threw things,but after all that it didn't change the outcome one bit.I am going blind.

Your nephew is a sweetheart and has a loving and wonderful family surrounding him,and he will surprise everyone with his accomplishments.I find myself doing things that even surprise me.

Anna thank you again for sharing with me

God bless you and your Nephew
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Last edited by BuddyBeanieBaby; 10-16-2006 at 08:29 PM.
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Old 10-17-2006, 02:24 AM
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Dear Theresa,
I really hope you will get better or learn how to cope with it. In fact, sight is something you dont value until you lose it. It's a pity that freezing doesnt affect you, because, otherwise, you shouldnt be afraid of laser surgery. Many of many friends have passed trought it and you dont even feel it, and the results are so wonderful. If your doctor was so irresponsible not to tell you your real diagnose, you should tell the association of optometrists about it. In Spain, we pay each month from our salary to keep national health insurance free, so excepting laser surgery, any medical treatment is completely free. But I just cant understand a private doctor, no matter if you pay for an insurance, or directly pay him, behaving that way!!! I would give notice to sanitary authorities even. That cannot be admitted. Lots of love


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Old 10-17-2006, 04:06 AM
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Theresa....My DH has glaucoma too. He was lucky when I left the first doctor I took my DH records too. After reading them found he had glaucoma and was not told either. It has been ten years since that day. His new doctor has halted the glaucoma with laser and vitamins. He still takes drops every day too. The laser treatment is painless and don't have to be sedated just drops since it only takes a couple of minutes.
The freezing is what ruined my eyes and caused it to detach. It also made me light sensitive in both eyes.

Learn all you can since they keep finding more cures for this disease.
www.glaucoma.org./treating/
_______
Sueanne
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Old 10-17-2006, 07:18 AM
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I am no longer a candidate for the laser surgery because my IOP is very high,and the drops are not bringing down the pressure.I have read everything there is to read on glaucoma,laser surgery,treatment and hopefully one day they will find a cure for it.
I am adjusting well to it,I have several programs on my computer that will read my emails for me.Hubby has everything labled in the kitchen.And my computer is my life line to the outside world.
Thank you Sueanne and Stitches for sharing with me,I don't feel so alone anymore.
Thank you
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