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Old 08-18-2003, 07:19 AM
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Hypothyroidism

My 13 year old niece has just been diagnosed with this disease. Does anyone have any experience with it?
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Old 08-18-2003, 08:40 AM
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I have this too. Its an underactive thyroid. I was diagnosed with it when I was 27 after they ran every other test in the world because back then ( Im now 35) they didnt believe that someone that age would really have that....it was still considered an "Old persons" disease. The nurse that was working with the doctor on my case actually said this to me--" We have run every test we can think of and they all came back negative. There is one test left and there really isnt any way that it should affect you ....are you sure you just arent lazy?" I swear this is true! After calming down and airing my opinion to her, I asked about the remaining test and it was for my thyroid. Yep, it was bad.

I have found out through my ventures that most regular doctors dont run thorough enough tests. I have been seeing an endocrinologist and he has worked wonders with me. He found out too that I was very low on iron which added to me being tired. My symptoms were being cold all of the time, having very dry skin, not being able to lose weight and at the worst part of it, I couldnt stay awake more than a couple of hours at a time.

I have been on Synthroid since the begining. The pharmacist at WalMart took it upon himself to switch me to a generic form and that screwed up my htyroid again. I cannot take anything but Synthroid for it. My endo. doc. said that it looks like Im one of the few who dont respond well to generic drugs in this case.

I can tell you, from someone who has been there, there is no better feeling than actually knowing what is wrong and being able to take this medicine and returing to a normal lifestyle. What medicine is she on?

At first, she will be tested every 3 months to make sure her medicine is regulated. Then it will go to every 6 and then once a year. It shouldnt change her lifestyle at all although it does make it hard to lose weight.

I have gone through 2 pregnancies and didnt have to have any changes in the meds but they did raise the levels after my son was born. I still have to make an appt. to see him since my daughter was born.

I had trouble remembering to take mine in the morning all of the time so I take my Synthroid at night. People are shocked at this because they think that you should take it in the morning because of the "powers of the medicine" I have gotten it Ok'd to take at night. They said that it really doesnt matter as long as it is taken consistently because your body needs to build up a steady amt. If you forget to take it for more than 3 days, it will be like starting all over again, so remember to take it!

Id like to hear more about your neice. How is she feeling? If she wants someone to talk to about it, I would gladly talk to her.

Please let me know how she is doing

Tami
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Old 08-18-2003, 06:47 PM
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Tami,

Thank you so much for the information. I know she is looking forward to having more energy and that she hopes she will get a bit taller and lose a bit of weight (of course if she gets taller, that will kind of take care of the weight situation).

Thanks for offering to communicate with her. I will talk to her about that.

I am so glad that they tested her for it; especially since you had such a hard time even having the test run on you!

I will keep you posted on how she does.

Julie
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Old 08-18-2003, 07:42 PM
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Hi Julie

Yeah, Please keep me posted on her. Has she been put on any meds yet? Please dont let her get discouraged about this if she is. Kids her age tend to think the worst if something is wrong with them. This is something that is totally controllable.

Hope to hear she is feeling better real soon!!

Tami
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Old 08-18-2003, 08:07 PM
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I've had this for the last 7 years. My gyn found I had it after having a baby. You do have to be very careful to take your meds everyday, and if you haven't been and you need surgery, they will delay it for 3 weeks until your body adjust.
Good luck, it's not that bad if you remember to take your meds.

Carol

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Old 08-28-2003, 04:39 PM
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Hello everyone. I will be seeing my sister on Saturday and will be able to find out more about my niece. She is on some form of medication and knows she has to take it daily (my sister has MS and has to take shots every day so it is a way of life for this family so I think she should easily slip into the daily medication way of life. I'll be glad to hear how she is doing though. I think she will have had her 1st check up by then so that will be good.
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Old 08-28-2003, 05:35 PM
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I was diagnosed with hypothyroidism when I was 19 yrs old. The doctor said that I'd had it for a few years by then. It contributed to alot of the female trouble that started when I was in my early teens and I still suffer from. My OB/GYN says had it been caught early enough, I might not have endometriosis as bad as I do or not at all!

I was tested because I had all of the classic symptoms - dry skin, constipation, hair loss, severe fatigue, depression, feeling cold & heat more so than other people in the same room and also the female troubles....prolonged periods with excessive bleeding.

Had anyone in my doctor's office even remotely suggested that I was just lazy like they did to ajrsmom, I would have come unglued!

Your niece is extremely lucky that they caught it so early!

Unfortunately, if your niece is anything like me, even on medication, she will fight with her weight from now on. (you don't have to tell her that though!)

I also take my Synthroid at night...with my doctor's blessing. She said that as long as I take it at about the same time every day (give or take an hour), then it is okay. The main thing is to take it to keep your levels even. I also take my prescription iron pills at night. I find it difficult to remember to take medicine in the mornings with the morning "rush hour" in getting everyone up , fed and out the door.

Please tell your niece not to be discouraged. As long as she takes her medicine and gets checked to make sure her dosage is correct, then she should not have any troubles.

Do you know what dosage her medicine is? I take 175 of Synthroid each day. I just had my dosage increased about 3 weeks ago. I went to my doctor and told her that I thought it needed to be adjusted even though it wasn't time to check. She humored me and drew some blood. Sure enough, I went from 150 a day to 175. In 3 weeks, she will draw blood again to see if the increase was enough. Personally, I don't think it is...but maybe after I am on this new dosage for a while longer I will change my opinion!

Good Luck to your niece! (although, I doubt she needs it!)
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Old 08-28-2003, 07:18 PM
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Abear - My dosage was changed this spring, I don't recall what it was before, but it's 150 now. I didn't realize that hair loss was one of the symptoms!

I have such a hard time remembering if I've taken them that I finally started using a pill organizer, so then I can look at that day and see if I've taken it.

Carol

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Old 08-28-2003, 07:51 PM
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Abear, Do you take your iron pill and Synthroid at the same time? My endo. doc told me not to take them together because the iron can lessen the effectiveness of the Synthroid.

Isnt it funny how after being on the meds for a while that you can tell when the dosage needs to be raised? Im taking 88mcg now it was raised from 75 about 6 months before I got pregant. With both pregnancies I didnt have to have it raised either, I was lucky.
Before they raised it the last time, I was going through major hair loss! I desperately needed iron pills as well as the thyroid meds. When most woman suffer hair loss with pregnancies, I didnt have any this time! Now I can tell that things are going back to where they were because Im having some normal hair loss again...sure hope it stays that way this time!

About my doctor....I was 27 and in shock that something like that was happening to me ( at the time I had no idea that I would be ok). I was smart enough to ditch that office and Never return to it!! The nurse that said that to me now works at my gyno office!
I told the ladies at the desk that I REFUSE to ever be seen by her and that I dont want her handling anything to do with me.

I learned from that experience that you really do need to see a specialist when you have a problem like that. I have been putting off my check up with him since having my daughter but Im going to make myself schedule an appt. tomorrow. I really thought by now that I wouldve lost some weight but it isnt budging and Im starting to feel crappy all over again...not a good thing.


Julie, Tell your neice that theres lots of good thoughts coming her way!
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Old 08-28-2003, 08:41 PM
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Quote:
Originally posted by ajrsmom
Abear, Do you take your iron pill and Synthroid at the same time? My endo. doc told me not to take them together because the iron can lessen the effectiveness of the Synthroid.

With both pregnancies I didnt have to have it raised either, I was lucky.
Actually, I take the iron about an hour after supper....and I take it with orange juice to increase the absorption of the iron.

Then, I take my Synthroid right after the 10:00 news goes off! I can remember it that way!

When I was pregnant with DD (who is now 19 yrs old), I desperately needed an increase in my medication but, back then, they wouldn't adjust thyroid meds during the pregnancy. As a result, a goiter developed on my thyroid gland from it working so hard to produce more of the thyroid hormone.

To this day, the goiter is still there but not noticeable unless you know that I have it and actually look for it. However, I can feel it when I swallow. I get an ultrasound done of my thyroid once a year to check the goiter.

When I was pregnant with both DS, my medication dosage had to be increased slightly.

Our insurance company will not let the pharmacies substitute generic meds in place of Synthroid so I am protected in that way.
As an added plus, even though I get the name brand, I only have to pay the generic meds co-pay!
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