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-   -   Chronic Fatigue Syndrome (https://www.familycorner.com/forums/health-chronic-diseases/4162-chronic-fatigue-syndrome.html)

sharlibird 09-30-2002 06:30 PM

Chronic Fatigue Syndrome
 
Has anyone else been diagnosed with CFS? My Dr told me about 2 yrs ago that I have it, but the only thing he suggested I do for it is get more rest and eliminate stress.

However, he also "laughed" when he said that b/c he knows that I have five kids at home and a non-supportive husband. The only "stress" I could eliminate would be my husband, but then that could create another whole realm of stress.

What have some of your Drs suggested for you? What are some of the things you do yourself?

Here lately, I been getting depressed (I think) b/c I have this "I don't care" attitude about lots of things...but not everything...and I have dropped a lot of things that I used to do regularly b/c I just don't have the energy.

One of my problems is my weight. I recognize that, but I am an emotional eater and have GREAT difficultly with willpower when I am under stress.

Let me know your ideas/suggestions/stories.

janet 10-06-2002 07:34 PM

Hi Sharlibird,

My Doctor recommends exercise...you start out slowly...like walking for 10 mins...then increase. I find the hardest part was actually starting...now it is second nature to me and just to let you know I am NOT an exercise freak, lol:-D

I also try to eat good food only...fresh veggies, fruit, grains and 3-6 ozs.of meat protein a day. I also take one stress-tab vitamin. I only drink tea,(no coffee) 1-4 cups a day.

One thing I found was that if I was really wiped out I would take it easy, take an hour nap, and try not to beat yourself up about it.

With you having 5 kids at home...that is reason enough to be tired...just enjoy your kids, nap when you can, and try to talk to your hubby. Maybe you need a day away with a friend to recharge yourself and have some laughter and girl talk.

Hang in there.

janet

paulssandy 10-06-2002 08:20 PM

CFS/Fobromyalgia
 
Hi,
Have you seen a Rhumatologist? You may want to look up both CFS and Fibromyalgia, as many beleive that they are the same disease manifesting itself in a different way. I will not bore you with details, but one year ago this month I was so sick I couldn't begin to tell how bad I was. Yet I looked fine, when I was young I remember being sick often and my folks saying 'you look fine, get to school'. These are called hidden diseases because there just is no seen symptoms, as with say arthritis where you can see where the pain is from the outward swelling.
I was certain what I had was CFS and told my primary care so.
I had already been to 2 sleep study's and was diagnosed with Idiopathic Hypersomnia--fancey for Yes, your tired but we don't know why. I was put on provigil which helped. But I wanted a diagnosis. My primary care sent my to a rhumatologist and I was in a full blown Fibromyalgia Flair-up!!! I was sure it was not FM since I was sleeping up to 18 hours a day, but that is what I have. It had gotten so bad that the fatigue had become worse than the pain.
Please check it out. Depression is one of the symptoms as well as a host of others. FM is a very complicated disease, but there is treatment to help. And stretching exercises are one of the best things youcan do to help the fatugue, depression, and weight gain. Start slow and do stretches ont arobics until you know for sure it is not CFS/FM since anthing but streching and walking will actually make you worse.

Don't give up, there is help for you, but you must seek it.

fatima bento 10-06-2002 11:54 PM

My 5 cents here would be depression. I have been a chronic depressed person since I was 12, and that can really tired you down. I am also overwight, but me too, I am an emotional eater - not in large quantities, I just crave sugar :(...

The advices Janet posted sound wonderfull! I am trying to get the courage to start eating smart and exercizing... I'll keep trying :rolleyes: ...

Well, gal, hang in there! Do indulge and "cuddle" yourself, You deserve it :heart:!

Fatima :cat:

TRICHARDVILLE 10-07-2002 05:19 AM

check into nutritional deficiencies ! That is the way your body is reacting because it isn't getting enough of something. There are a lot out there. We use American Longevity and love it. Let me know if you need more information. In the meantime, I'll look in my book to see what they recommend that you are "low" in.
good luck.

charlen 10-07-2002 05:25 AM

CFS/Fibromyalgia
 
I was diagnosed in 1995 with Fibromyalgia/CFS, after going from doctor to doctor until I saw a rheumatologist. I can tell everyone understands the symptoms, although the cause can be varied. There is a belief that it may be viral, related to sleep disorders, or even excessive excerise (that you aren't used to). I lost 2 years where I could barely lift my arms to get dressed, and when I did, I would be so exhausted I would have to rest for hours after.
The specialist I saw prescribed a muscle relaxer (Soma) to sleep, and I have heard from others that a mild tranquilizer at bedtime gives the same effect. She also prescribed a several vitamins. I take a multiple vitamin, Vit E, Vit C, and B complex. Geritol is a B vitamin complex that gives you energy. I also took a massive dose of anti-inflamatory medicine for the joint pain. Also lower fat, and LIGHT exercise only. Obviously, consult your doctor, or see a rheumatologist.
After 2 mishaps with taking hugh doses of anti-inflamatory medicine, my kidneys shut down, so I had to stop.
To make a long story short (too late now), I now take only the vitamins, and Tylenol PM to sleep. I have gone through many periods where I feel fine, but when I have a bad period I am blessed with a great husband who has the patience of a saint. Don't give up, just take one day at a time. Don't beat yourself up about losing weight at first, focus more on relaxing as much as possible. You may be interested to know that Cher has suffered from CFS for many years. :)

nmygarden2001 10-07-2002 06:41 AM

I totally agree with the starting out exercising method, that should help. It will give you time alone, and time to think. You didn't say how old your children are, but if they are all in school... after you get them off and on their way.... Take a nice little stroll, listen to the birds sing, watch the sun-rays shine through the tree branches,look at the flowers , maybe even take a wiff of one......just take a few minutes a day for yourself. Make it "your time", to de-stress.
Everyone has stress...... I don't know why doctors say" cut the stress out of your life", YEAHHHH right, like that can happen. But doing something to makes ""you"" feel good is what makes a difference.

Take Care of yourself,
Karen
:heart:

sharlibird 10-07-2002 05:37 PM

Hi everyone,

Thanks for all the replies. WOW...I didn't think I'd get that many responses.

I acknowledge that exercise would probably help me, and I don't want to seem like I'm just making excuses, but right now, I'm having a hard time finding "the time" to do this. Yes, all my children are in school (twins are in 1st grade...oldest in 9th Spec. Ed with Down's syndrome)...

However, I am now a teacher's assistant for Head Start working with 18 3-5 yo's every day. (So call me a glutton for punishment, but I really like working with children.) I had to go back to work due to finances...it was really hard losing my $32,000/yr salary when the twins were born. Hubby kept harping on my lack of income in the family. He still can't understand why I haven't gone back to work in computers...like I can handle full-time 40+ hrs per week plus all that I try to do now!!

The thing about the fibromy...(whatever it was called...can't remember the spelling). That is interesting to note, because I haven't "felt good" in years...since I was a child actually; of course, that could also be depression. There was a lot of favoritism/criticism in my family (and a temperamental father) as a small child and my parents divorced when I was 15. And I tend to hold things in for years...I still remember things from when I was 2 yo. It's hard to let go for me. Guess that's one reason I crave chocolate. BUT, it has been proven that there is an actual chemical in chocolate that produces the "feel good" hormones.

I will mention these things to the Dr next time I go...but I don't know when that will be. I already owe LOTS of money to the Drs & hospital that I cannot really afford to go right now. Hopefully in the next few months, this will work out...If I can only hold out until then.

Like they say...One day a time.

brendalou1969 10-14-2002 09:15 AM

CFS / Fibro
 
Cut out the carbs... eat more protien and veggies. No fruit, bread or pasta. It helped me BUNCHES!

See a Rumatologist. With 18hrs sleep, you might have fibro. If you don't reach stage 4 you will tend to keep sleeping... I had that problem.

Would your hubby act the same way if you had cancer? If so, you need to be thinking seriously, if not, he needs to be educated!

God Bless!

paulssandy 10-14-2002 08:07 PM

fibromyalgia/CFS
 
I do urge you to go to your Dr. and ask for a referral to a rhumatologist. Every one I have spoken to (physically or over the web) who has fibromyalgia can remember symptoms as far back as you mentioned.

Recent research has shown that people with fibromyalgia are seriously deficiant in the neurotransmitter seritonin. GUESS WHAT!! Chocolates chemical reaction to the body is to increase the seritonin!!! NO KIDDING. Please spend a little bit of time researching this. Just go to any dearch engine and punch in the name "fibromyalgia". Write it down first, it is hard to remember when you have never heard it before.

"Fibro" is a term referring to connective tissue.
"myalgia" is a term referring to muscular pain
Fibromyalgia therefore means continuous pain (discomfort that at times can be as if you have the flu) in the muscles, tendons, ligaments, and even your skin.

One wonderful site is:

www. arthritis.org

This is considered a type of arthritis or autioimmune disease (like lupis).

Also, note that it is a stress induced condition. Working and having kids and a home to run is very stressful. Especially if your husband thinks that it is partly your job to financially support the family. (sorry guys, but this is your job and responsibility and we are to keep the home) It's just the way we were made and the way men were made.

Do not put this off. It would be wonderful if it were only a vitamine deficantcy (how ever you spell it), but from the sound of it, it most likey is not. Most people, even some DR's do not understand the condition and chalk it up to such things. Only those who truely have studied the condition and/or have it, know it is far from that simple. If only it were.

No matter what it is, you owe it to you children not to put it off. To be the best mom you can requires that you take care of youself so you can be there for them when they need you.

Please let me know how it all works out.

Sandy O.
If you have any questions go ahead and e-mail me at

[email protected]

OH!!!! What brendalou1969 said about stage 4 sleep is also a symptom of fibromyalgia. It is in stage 4 sleep that our body does it's repair work, and also when our brain replenishes it's seritonin. Fibromyalgia patients have a problem with the alpha/delta brain waves. Simply put, the brain goes into a deep stage 4 sleep and panics, sending wake up waves to interfere! WHY?? I have only found research that explains that it does, they have yet to find out why.


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