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  #61 (permalink)  
Old 07-13-2002, 07:48 PM
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Me too

I have fibro too. When I am in a period where I can not think straight I call it a "Fibro Fog". I had read a really good book about fibromyalgia from two women doctors who have it. It was a really informative book. A lot of times a traumatic incedent to the body is what triggers the fibro and childbirth/cesearean is one of those. I found out I had it about a year after having my first son in 1996 after I seem to have continual back pain that never went away. My mother has it too. I jsut went through a year off my meds so I could have a second son and have been back on them now for a few months (my baby is 5 months old). It was a really rough year. I took nothing. But I just kept reminding myself it was for the health of my baby. I have been on Celexa but it seems to make me dizzy, I am going to ask my doctor to change me. I take flexeril at night, if I do not take it I can not get out of bed in the morning. I also take ambien for sleep. The reason we do not sleep is because we can not get to the delta stage of sleep where we get rested. Only the alpha level which is the first stage of sleep and the most restless and that is why we wake up feeling worse than when we went to bed. Ambien works well for me - I can get to sleep. I have been taking my baby to the Y pool and working my body some in the water which helps some. It is best if you do things that are easy on the joints like water aerobics. One of the best tips the book gave me was to lay on tennis balls. Place the tennis balls on the trigger points - 1 on each side of your spine and lay down on the bed and bounce on them. This presses into your trigger points. It hurts a little, but later you feel sooooo much better.

As far as the yeast, it has been a problem for me too. I was having trouble with sex being painful and went to a specialist who said it was caused by a weird strain of yeast. I take Acidophilus (found in the herbs supplements in any drug store or Wal-Mart). It is the active ingerient in yeast so it is perfectly safe. It aids in digestion and fights the yeast. You have to watch you sugar intake as that is what yeast feeds on. I will look into the Yeast diet too to help me as this is a continual problem for me. If I have to take antibiotics then forget it, it kills the natural bateria in your body that fights the yeast and then I have to fight the yeast. Yuck!!

I am done having children so I can finally do what I need to to take care of myself.
Amy in NC

  #62 (permalink)  
Old 07-13-2002, 10:52 PM
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Hi every one It's really good to read all your suggestions and visit all the recommended websites but my main problem is that I cannot find the books mentioned and I cannot order them.because I'm not in the US nor France at this stage of my life
Can any of you write me a specific Yeast diet I could follow. I also need to loose about 40 pounds! Please Help!
  #63 (permalink)  
Old 07-14-2002, 08:28 AM
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Massage and Fibro

I've had massages from two different massage therapists. The deep muscle massage was way too painful for days afterward, but I had a neck and facial massage from another lady that was absolutely wonderful. She used a light touch and special oils and I felt wonderful for weeks after. I really think it has to do with what school of massage they have taken. I am now looking forward to a massage (I won a free one if you can believe) from the light touching masseuse and I can't wait! I also have a little homemade backscratcher and I swear that when I lightly run it over my back I can feel the knots release, it even tingles. I try relaxation excercises to try and train my back to release, but I've got a long way to go with that.

Has anyone heard of MSM (methylsulfulmethane)? In the winter when my joints are really aching, I have taken it and had some's just that it is pricey and tastes just awful. It's supposed to be recommended for arthritics.
  #64 (permalink)  
Old 07-14-2002, 11:47 AM
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I was diagnosed with FMS about 10 years ago maybe more, lost track of time. I have had depression since post partum days w/ my son, he has depression too, he is 21 now. I have been on antidepressants for what seems like forever, That way I am doing fine. I also have a seizure problem caused by a hemangioma in my head. I take meds for that too. Seems like the meds I take for these two things are the ones most often used w/ FMS but they do not stop it, I now take Vioxx and Darvocet N for the pain, I have degenrative disk disease as well as the fms...who knows what pain hurts more? I just hate the fatigue. I do push on and do things I want to do even when I am in pain. I try to exercise but I work full time and am in grad school so I do not have much time for me. Heat bothers me a lot, does it bother anyone else?
I found the support group near me was nothing more then a forum to complain so I stopped going.
I hope you all do well.
  #65 (permalink)  
Old 07-14-2002, 12:54 PM
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Good afternoon everybody,

Talking about being heat sensitive....I have always been such a hot natured person, everybody looks at me like I'm crazy! Everyone around me can be freezing and I will be so hot. When I get like this, I feel like I can't breath (I do have alot of allergy and sinus problems too). It's not like I can't breath with my lungs, it's more like I can't breath with my nose or mouth~~strange! Anyway, I wanted to say thanks to everyone for sharing their experiences and knowledge, I can't wait to check out those web sites!
~~Pam (in NC)
wife to Bobby (17 yrs.) and
homeschooling Bobby, Jr. (12) for over 9 years
  #66 (permalink)  
Old 07-14-2002, 01:28 PM
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Question so many of us with FMS

It's so sad to see so many of us with this DD. Perplexing as well as to why... Traumatic events, births, illnesses, surgery, other injuries, physical assaults, toxic exposures etc etc etc. I am now on very few prescription meds. Supplements and lifestyle changes gave me some semblance of a life back. I practice aromatherapy, craniosacral massage, meditation and yoga. These things seemed to have helped over a period of time. Serenity in my life is essential as I seem to handle stress badly by internalizing it and that makes me hurt so badly. Wishing you all good health and a good week.
sending gentle hugs and hopes for pain free days and nights
Mary Pat AKA Fibronurse
  #67 (permalink)  
Old 07-14-2002, 01:32 PM
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To Kimmer36,

I've tried MSM a couple of times with mixed results. Yes it helps some people with RA fibro related problems- I think it helps flush
the fibronin out of your system into your kidneys faster. I took it for 6 months it did lessen my pain however, it was too hard on my kidneys raised my blood pressure 18-20 points so I stopped it and my blood pressure went down quickly. It dosen't taste bad however it did repeat on me sometimes gave me heartburn, I burped on it and it gave me slightly garlicy breath so all in all I stopped taking it. Someone else might have had better results
than I did though.
  #68 (permalink)  
Old 07-14-2002, 07:08 PM
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Hello Party Consultant

I think the "brain fog" is the worst for me...I had it very bad 2 years ago, couldn't think or remember and had intense pain...this was a first time being in a fog like that and I was scared...I had it for about 4 months straight...I had to write everything down or Iwould forget. I started doing brain exercises, to keep your brain thinking and using different things. One example was to brush your teeth with your nondominant hand, including opening the toothpaste, applying the toothpaste etc. It was so odd for me and you had to think. I test my brain all the time now..another one is brush or style your hair with your hand you wouldn't my case it is my left. Try it sometime it is funny.

  #69 (permalink)  
Old 07-14-2002, 11:19 PM
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Hi every one and thanks Janet for your "Brain exercises"
I'm doing them and need some more!
Have a nice and less painful day
  #70 (permalink)  
Old 07-15-2002, 04:23 AM
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I have to agree that the "brain fog " is to me, the most frightening symptom of the fibromyalgia. I'm always convinced I'm going to be the first 45 year old ( or younger when it started) diagnosed with Altzheimer's . It terriifies me. It's the one thing I'm always afraid to just put off to the fibro. When the fogs are really bad, it sends me off to the doc for a little reassurance. It's such a powerfully, incompacitating thing.

Recently, I was driving somewhere locally, and just couldn't figure how to go from there to another familliar spot without goiing home first. It was awful! Or I'll find myself stepping out of the shower and not recalling if I've shampooed my hair! ( I also wish they's manufacture little homing devices for keys, hairbrushes and the "other" shoe. LOL!)

Do the rest of you have similar experiences with the foggy days? I don't hear a lot of examples of the kind of "fog " experiences other sufferers endure. We mostly tend to share our exhaustion and aches.
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