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  #261 (permalink)  
Old 08-18-2002, 02:05 PM
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Massage

I was going to get a massage every couple of weeks but the lady applied so much pressure that it made me cry and then I'd hurt for another week. I thought if I kept going, it would get better. It never did. I'm sure if I could find a specialist that knows the pain connected with fms, I'd get a much better massage. About the only time I feel pain free is right after I get out of a jacuzzi. Unfortunately, I don't have one nor do I know anyone that would let me live in theirs.
  #262 (permalink)  
Old 08-20-2002, 10:00 AM
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Ladyinmaille, Too bad health insurance wouldn't pay for a hot tub! I have had friends that have them and they have to keep chemicals in them to keep it healthy...I think I would rather have a Jacuzzi in my bathtub! Fresh water each time.

My old house had a deep and extra long tub and it was so nice to fill it up with hot water and bubbles to soak. This house has a short straight back tub...miserable to even take a tub..so showers only...

janet
  #263 (permalink)  
Old 08-20-2002, 01:51 PM
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Janet

If I could get my insurance to pay for a jacuzzi or get it a tax break, I'd have one installed so fast it wouldn't be funny. I've got a enclosed porch I could sit it in. I'd come straight home from work, feed the cats, and jump in the jacuzzi and wouldn't come out until bedtime. Maybe that's why I don't have one, my dh knows I wouldn't get out to cook supper.
  #264 (permalink)  
Old 08-20-2002, 07:54 PM
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Ladyinmaille, I guess all we can do is dream! lol

Are you going to be up to your weekend in WI?

I hope you are feeling fantastic and that you have a good time, weather, food, and no pain!

janet
  #265 (permalink)  
Old 08-21-2002, 09:55 AM
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Ladyinmaille

I'm noticing you have mentioned that you can't stand for long because of pain. What kind of pain are you having? I ask because I am not so sure the doctors really know what is going on with me.

They say it's spinal stenosis, but I have good days and bad days too.

A little voice says that this may be one awful bout of Fibro...like the worst of my lifetime... complicating the diagnosis, and no one is picking up on it.

I'm just curious how you feel when you say you can't stand for long, because I feel that way too. It's not just the pain in my legs and back that affect me, but my legs and back feel too tired to hold me up as well. My arms and hands are better. They are fatigued too, but not nearly as tired or painful as my back and legs. The other part that doesn't sit well with me, is that my back pain isn't confined to the injurd area. It is my whole back. Just like the myofacial and fibromyalgia pain I have always suffered with.

I'm just looking for some reference point here, I don't mean to pry, but I am at a loss. Would you mind talking to me about how you feel?


Val
  #266 (permalink)  
Old 08-21-2002, 06:22 PM
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Val

No I don't mind you asking. Its mainly my back and legs that are killing me with pain but also the fact that it's too much effort to stand up. Sometimes its my head that seems too heavy to hold up. I don't know how else to explain it other than pain and too much effort to support myself.

Janet, yes, we are headed for Wisconsin on Friday morn. Can't wait. Right now I'm not doing so well and having to double up on muscle relaxant and ibuprofen. Today, at work, I hurt so bad that I didn't think I could make it through the day. But tonight I got to see my grandkids. Granted I still hurt, but I have a smile on my face.
  #267 (permalink)  
Old 08-21-2002, 07:33 PM
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Hello Ladyinmaille,

Just read your post and I know exactly what you mean when you feel like your head is too heavy to hold up. I have had that feeling too! Some days I feel like my clothes are too heavy for my shoulders, especially if I am wearing a denim shirt or blazer or a heavy winter jacket..I find I have this in cooler weather or like today..all it has done is rain...only 61 today and down to the 40's at night.I came home and put on my flannel pj's to keep the chill off of me.
So glad you were able to enjoy your grandkids...it is great they can raise your spirits.

Have a safe trip and have fun!

janet
  #268 (permalink)  
Old 08-22-2002, 07:30 AM
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Ladyinmaille

I don't mean to pry, but it seems like I may be doing it.

I am just so very concerned that I could have been misdiagnosed these past 8 weeks. I've been feeling beter the past two days. I can stand up, and the pain is not as severe as it had been in the early parts of the day.

I think if it really was stenosis and nerve compression alone, this would not be true. I think that I had a flare of my fibromyalgia, that was sparked by the injury to my back.

Is fibro your only diagnosis or do you have another cause to your back and leg pain and weakness, like sciaticia caused by arthritis, or stenosis of the spine, like they are telling me?

I think the muscle spasms that made it impossible for me to stand or walk or hold myself up had to have been fibro related. I was wondering if you agree? Is it muscle spasms that make you feel this way without any other diagnosises?

I'm just looking to speak with someone who has experiences similar to mine, and hoping to get some insight so I can get some answers. I'm not having any luck with doctors.

The apointment with the pain specialist and rheumatologist is still 3 and 6 weeks away ( respectivly) and the symptoms will have dissapeared by then at this rate. Not that I'm compalining about my improvement. Just what am I going to do about getting answers to prevent it from happeneing again, if they can't say what the cause was in the first place!

Again, If i'm being too intrusive, and asking for too much specific information, please tell me so. You have been such a source of comfort and support to me on this board, that I would not want to do anything to insult you or intrude on your privacy. I understand we all share only what we are willing to offer. You have been an angel, and I wish you pain free days and nothing but pleasure in Wisconsin.

Thank you,


Valerie
  #269 (permalink)  
Old 08-22-2002, 08:10 AM
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Valerie I don't think you have to worry about the doctors being able to figure out what is wrong with you if your pain has cleared up. They have a lot of experience with this type of pain and they can tell a lot about what is wrong by what you tell them. I have had it happen so many times now that the day I am to go to the doc I would feel better and be able to move better than I have for weeks but my rheumatologist understands and spends time talking to me about how I have been feeling. You won't be the first that comes in feeling better.

I am not sure what to tell you about your muscle spasms. Yes I have then in my back and in my legs as well as my arms and hands. I have always artibuted it to my Fribo but that is not anything that the doc has told me. Last night and today my legs feel like I have had charly horse in them from the top to the bottom. If I move right I have spasms. So I figure that my fribo is acting up in my legs too. Already having a great deal of pain in my shoulders down my back and arms. I'm so tight that I feel like someone is squeezing me in a vise.

When I was dealing with compressed nerves in my back I often felt worse in the morning that in the afternoon. I always thought it was because I had been up and moving. Evening were bad again when I was tired and didn't want to do anything but sit. They are finding now that sitting when you hurt is not the best way to deal with it. You need to be up and moving to keep you body from freezing up. I just read an article in this mornings new paper.

I wish I had some answers for you but I don't. I can't even really relate to you what my pain is like or why I have pain. I pray that when you see both of these doc they will be able to help you find some relief.

__________________
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A friend is one to whom one may pour out all the contents of one's heart, chaff and grain together, knowing that gentle hands will take and sift it, keep what is worth keeping and, with a breath of kindness, blow the rest away.
  #270 (permalink)  
Old 08-22-2002, 12:51 PM
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Valerie

No, Valerie, I don't mind answering your questions because I'd like to help you if I can. I know how frustrating it is to make Dr's understand what you are telling them. I went for several years with the Dr's telling me all my pain, exhaustion, weakness, headaches, cramps, seizures, etc., were all because I was depressed or needed to see a councelor to talk out my problems. Like anyone would be so mentally unbalanced that they would put this on themselves.

My only diagnois is fms. Oops, was recently diagnosed with copd, too but that has nothing to do with my problems. If by muscle spasms you mean the kind of cramps that twist your hands or feet up in knots, yes, it is the muscle spasms. Have them all over my body.

And yes, I do have major major fms flairs that incompacitate me. I've had to crawl to the bathroom because I couldn't stand up. I wish we lived closer so we could talk face to face. It would make it ever so much easier if we could point and say, this is where it hits me the hardest when I can't stand.

I am not saying what is going on with you isn't what your Dr's are saying. We have to be very careful not to lump every symptom with fms. But if you don't get any relief on the meds or therapy they are putting you on, get very vocal with them and say "can we try something else, this isn't working." One time I had a migraine so bad that I told the Dr. if he didn't do something for me and do it right away, I was gonna pull my eyeball out. I didn't really mean it but he must have thought I did because he gave me a shot of something that was so strong I had to be carried out to the car and I slept for 2 days.

All I know is that we are in this together, kiddo, and I'll be here and try to help whenever you need me.
 
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