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  #11 (permalink)  
Old 07-14-2008, 05:47 PM
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Cindy Lee -- BTW I forgot to tell you the combo of drugs that has worked (sort of) for me = topamax, lithium (low dosage); verapamil; amitriptlyne. The only one I really hate is the Topamax -- it causes memory loss. I also lost about 30 lbs. when I first started taking it cause I would forget to eat unless someone told me to. Unfortunately, that went away!! like I said, e-mail me if I can be of further help.

darlene (Edited by Asst. Administrator to remove private information. If you would like to contact this member please use the Private Message system or email her through FC if she has that option available. Thanks, Tami)
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Old 07-14-2008, 06:20 PM
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It does sound like my husbands headaches and yours are a bit different,,
His is all on one side of his head, (right side) his eye and nostril run profusely, and he describes the pain as if someone was drilling right into his eye, and going straight through to the back of the head,,,
We have been managing the headache with Imitrex Nasal,,(which by my research is much the same as Zomig) and every so often the specialist told us to go to hospital for a shot of demeral to break up the imitrex usage,,(he said imitrex and most other drugs are design for people whom get migraines and are not something one should take every night for how ever long his headaches last,,,Yes he has been on beta blockers, lithium and many other kinds or treatments and nothing seemed to do any good or help the situation out,,,
yes I believe that not knowing what the heck they are all about or why he gets them is the frusterating part ,,and also that when he is in a batch they basically rule our lives,,
My hubby also manages to work everyday,,with the headaches coming in the late afternoon or early evening...
Anyhow,,I is good to read all your posts and how you all cope with these headaches,,,Hope all is well with everyone,,,
Not much going on here,,I have been pretty depressed lately cause he has had these headaches ever since our youngest moved out,,so we have yet to enjoy our empty nest and have had some great weekends weather wise, in which we did nothing,,,cause it is just more comfortable to deal with a headache is we are at home,,,so we don't go anywhere or do anything,,cause during a batch you just never know,,,,
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Old 07-14-2008, 06:31 PM
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Cindylee, that sounds exactly like mine, except I describe mine used to be having a sharp metal stick, shoved into my head. The metal stick had been stuck in a fire and there were sharp spikes all over the end. I am so glad I don't have to endure those any more.

DDstaylor, I don't know what type you had. They tried me on all those drugs too, but none worked for me either.

I was told that 90% of men have cluster headaches and 90% of women have migraines. If you happen to be the 10% that have the other kind, it is hard for professionals to believe you.
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Old 07-14-2008, 06:55 PM
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Yes in the years,,,since the late 80's when my husband first started getting these,,,he has had every drug and treatment you all have mentioned,,even the IV thing and either it did nothing at all or made the headache worse,,,,
The other thing that scares me,,is the specialist said,,each batch he gets they will last longer,,,so the last batch he had in 2002 ,,lasted shortly more then 2 months,,,so does that mean this batch is gonna last longer then that,,,and Yes I have kept a diary, or journal all the way along,,and true to form every batch of headaches he has had has lasted longer then the last,,,,,We truely did think he was all done with them,,cause prior to 2002,,,he would have a remision of just a big over 2yrs between batches,,now gosh it has been 6 yrs,,since 2002
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Old 07-14-2008, 07:00 PM
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Cindylee, the last major headache I had was in 2002, before I have my first RFT nerve block. At that point, I had no hope. My youngest graduated high school in 2000 and I wanted to achieve my dream of going to college. I don't know what I would have done if that nerve block hadn't worked. I am glad I found something that worked for me.
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Old 07-14-2008, 07:08 PM
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Ok ,, I have checked out that also,,and I do believe they have tried my hubby on that also,,and didn't work....(RFT nerve block)
I was talking to his sister whom gets bad migraines,,yeh they run in his family,,and she has had luck with the nerve block but no luck on my hubby,,
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Old 07-14-2008, 07:14 PM
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Was it an RFT or another type? The other types haven't worked for me, although the procedures seem similar in that I lay with my face down, they numb the back of my head, and so on. Another thing your DH can check on, that didn't work for me, is an electrical device that is implanted in the scalp. I will see my doctor next month for a check up and I will ask what that was called. I didn't like it because it was very painful and I would have to carry around equipment all the time. But, when a headache occurs, I was to push a bottom and it would vibrate on my head. I hated it. I am way too active for that. The swelling took too long to go down after that procedure and I just wanted to pull it out of my head! But, my doctor swears that there are patients that love this latter procedure.
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Old 07-14-2008, 07:24 PM
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I don't thing anything like that would work for my hubby,,cause of his job,,,he operates machinery,,and moves about alot during the day,,,
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Old 07-14-2008, 08:05 PM
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Cindylee, that is why I couldn't keep it, I am way too active! Good luck to your DH on whatever he finds to do with his headaches.
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Old 07-15-2008, 12:04 PM
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I am one of the few women that have cluster headaches. I cant afford to go to the dr and try all the different therapies. Mine come at all times of the year, no set time at all. I see no specific triggers. I have been getting them since I was 15 yrs old...that is 30 yrs.:-(
I just go to my room and ride out the pain. I usually get them for about 2 to 2 1/2 months. It has affected my working, I never know when they are going to start up. I can even now, feel the "pressure" by my left eye. I know they could very well start soon, and school for the kids start soon and I worry about that.
Anyway..I sympathize with all who have any kind of headaches. They are the worst!
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