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  #91 (permalink)  
Old 01-19-2007, 04:40 AM
ewriggs's Avatar
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Not much traffic here in the last 6 weeks! Hope it means everyone is doing well and too busy to post rather than too painful and tender-pointed to deal with posting!

The aquatic therapy is still working well for me. Different things work better for different people, but if you haven't tried it as yet, I really encourage you to do so. Don't try to do any heavy exercise or hydrorobic type stuff, just do long slooooooooow stretches of all the big muscles and do some forward, backward and sideways walking in the 4-5ft section (about shoulder-deep). Use your arms to help you make headway.

Here's to a more active, less painful, less fatigued, less "foggy" lifestyle in 2007!

Cheerio!
Elizabeth

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~*~ Life is not measured by the number of breaths we take, but by the places and moments we see that take our breath away. ~*~
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  #92 (permalink)  
Old 01-19-2007, 07:38 AM
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Hi Elizabeth, I am in a fibro flare so all I am doing is trying to get sleep and take tylenol as much as I can.

Soft Hugs,
Janet
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  #93 (permalink)  
Old 01-20-2007, 03:26 AM
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O yuckies! I'm soooo sorry! My fibro has been flaring off and on, too, but the stretching and the pool have really been helping with that. Wish it would help everyone.

Today I have 16 of 18 tenderpoints feeling like hot marbles when they are touched. So I'm for the pool this afternoon. Hard for me to make myself go, though. I'd rather just curl up in a warm bed with some Tylenol and sleeeeeeep. But I know I'll feel better after I do my aquatic therapy, so I'll make myself go.

Get to feeling better!!

Cheerio!
Elizabeth

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~*~ Our greatest glory is not in never failing, but in rising up every time we fail.
~*~
~*~ Ralph Waldo Emerson ~*~
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  #94 (permalink)  
Old 01-29-2007, 11:00 AM
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Hello. I was recently diagnosed with Fibromyalgia and I feel so misunderstood by everyone I meet. I volunteer at the front desk at the hospital twice a month and I can just sit there and answer the phone and read and say hello to people. But if they ask me to fill in as an escort (taking people who are discharged out to the entrance, showing people where they need to go, pushing people in wheelchairs, pushing carts, taking medical files to the different floors when they are needed, delivering flowers, etc.) and I say that I can't do that, they seem to react to me weird even if I do explain my condition. Maybe because we "LOOK" healthy enough. And I am only 33 and a LOT of the escorts are in their 60s and 70s. Ok... I just needed to vent. Thanks. Elizabeth Bowen
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  #95 (permalink)  
Old 01-29-2007, 03:15 PM
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Welcome, Elizabeth! (from another Elizabeth - LOL!)

Many people with fibro here, and each with a different story and different ways to cope. I've had it for about 30+ years, now, but wasn't diagnosed until about 17 years ago. Some find good help using guaifenesin while some others find help from using combinations of antidepressants (especially the NSSRIs) and pain medication. For some, no specific treatment "works," but they find various ways to cope and to live their lives as fully as possible.

There is some help to be had for many through specific physical therapy exercises, especially using aquatic therapy techniques. I'm one of the ones who had good results from Guaifenesin for several years, and am now trying physical (aquatic) therapy with excellent results. I did not have wonderful help with the old anti-depressants, but am getting some good relief from Cymbalta (another NSSRI, Effexor, works well for others). I just can't stand being "dopey," and don't react well to most pain meds and most psychotropics.

It's hard to handle sometimes when I look around the house and see nothing but dust, cathair and clutter, and I'm not able to "do" anything about it. But, like many of us "fibromites," I have a wonderful family. They don't necessarily understand, but they *accept* that what I tell them is true and that I'm not trying to "get out of" doing work that needs doing.

I often just tell people I "have a bad back." The uneducated seem to understand and accept that better than "fibromyalgia." Since the muscles all up and down my back DO hurt when I overdo, I'm not exactly fibbing...

Some of the places with really good info about fibro are listed in the various posts in this topic. Look back through and try out some of the places.

I'm a very optimistic and basically cheerful person, so I often try to do more than I can or should. I'm also rather jovial and try to find the "lemonade" in the batch of lemons. Others here are more realistic.

I hope you find some help here. I certainly did - and continue to. Janet, our moderator, is great!

Cheerio!
Elizabeth

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~*~ The doctor came in and said "I have good news and bad news. The good news is that you have fibromyalgia but it won't kill you. The bad news is that you have fibromyalgia but it won't kill you." ~*~
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  #96 (permalink)  
Old 01-29-2007, 03:34 PM
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Whoa....Elizabeth, I am not a moderator here at FC..I am just a Family Corner Addict.. I love this site, and there are so many great, kind, people here...so I am just a visitor too..hee hee.

Anyway, EBowen..I had a post for you..but I lost it..anyway, So glad you found this thread and welcome to the club of Fibromanics..meaning there are times we are crazy in a brain fog, or pain..but we still continue to keep breathing and moving forward....and we all realize Fibromyalgia is the disease, and we do not let it define us.

I am so sorry your "Volunteer Job" looks at you weird..I think the main problem is, Fibro is an invisable illness..we look good on the outside, try to remain chipper, and inside of us, our muscles are pulling, cramping, or aching.

I too used to work in a medical field and I received NO Support from them..except my primary doctor who did try to intervene for me..my boss was not understanding at all, and discounted my illness.

There are some people out there that can be very nasty and rude.
I have come across a few people like this in my lifetime.
Everybody has their own "stuff" that they are dealing with.
You don't know what other people's baggage truly is.

So surround yourself with people who love you, smile at you,
give you a warm, comfortable, supportive and energizing feeling.

That's the philosophy I live by.
Janet<><
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  #97 (permalink)  
Old 01-29-2007, 04:00 PM
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Quote:
Originally Posted by janet
Whoa....Elizabeth, I am not a moderator here at FC..I am just a Family Corner Addict.. I love this site, and there are so many great, kind, people here...so I am just a visitor too..hee hee.
OOPS!! I thought you were a Mod, but just realized you are the one who started this thread, not a Mod. Well - you oughta be one! LOL! You keep us in line and help us so much with encouragement and information.

I hope you are feeling well with all this crazy weather we've been having this year. It's wrecked havoc with me - less from the fibro and RA so much as my chronic bronchitis. It flared into an acute attack last week and I was out of luck trying to go to therapy. Boy! I could tell a difference!! Not going was **awful** for me!! I went today and I feel sooooo much better now! Guess I learned something!

Gotta get on to bed. DH is exhausted from too many 12-hr days recently, and I need the rest, too.

Cheerio!
Elizabeth

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  #98 (permalink)  
Old 01-29-2007, 04:18 PM
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Elizabeth, you are so kind and thank you for the compliment. I really like Family Corner and it is great to meet people from all backgrounds too.

The dampness of winter here is playing against me, and keeps me in a flared up state.

Currently I am trying to figure out if I am having osteoarthristis in my finger and joints in my hand, or is RA starting...I did test negative for RA many years ago..but the Rheumy did say many patients have RA but do not have an RA Titer..

What I do know is somedays holding a cup of coffee in a mug is too much for my hands, and my wrists are hurting too..so who knows?

I am holding off going to my primary doctor for I am due in a couple of months..and feverishly trying to pay off medical bills.

It soon gets to be a vicious cycle..money spent and no relief. lol

Gentle Hugs, Janet
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  #99 (permalink)  
Old 01-29-2007, 05:57 PM
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I've been in a really good mode latly not much pain and not really tired matter of fact tonight I raced my dd2 home from the school lol I was so excited that I could even run a little that it didn't matter that she beat me. I'm off my anti depressant also and I really do feel good...I don't need to see my doctor unless I get a flare up hoping and praying that doesn't happen. Janet take it easy and I hope that soon your "flare up" will go away.
Rosey
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  #100 (permalink)  
Old 01-29-2007, 06:42 PM
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Thanks Rosey!! So glad to hear you are doing well!!!
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Last edited by janet; 06-05-2007 at 06:04 AM.
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