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-   -   Syringomyelia (https://www.familycorner.com/forums/health-chronic-diseases/13438-syringomyelia.html)

stardust12 02-02-2005 01:39 AM

Sorry for the back to back post but I didn't welcome sweetspirit. Welcom sweetspirit the ladies here are truly an amazing bunch of women hope you will stay awhile.

love ya,
Rosey

Lifestar 02-02-2005 06:16 AM

Deb, I'm thinking of you today.. and know that I'm holding your hand in spirit as you go to your Dr's apointment.

We're here for you as you return with your news, and I have a (((hug))) for you.. Good news or bad.


***********

Eva,

What a font of wonderful information you are on this subject!!

I am sort of the "medical librarian" around here.. lol,, and did some research on this disorder when my older dd was diagnosed with Chiari Type -1 ( and then later found out I had a Chiari malformation too...all my life, and never knew it!) ... But thank G-d neither of us have ever developed a syrinx.

I understand the physiology of it..and the risk factors... But to me it's just research.

You live with it, and I can not even begin to imagine what that's like.

Deb's posting was answered by a higher power.. He gave her you.

We all hope her diagnosis is negative, but just knowing that you are there to offer support is such a gift, '

I , for one, thank you for coming forward to offer support. I guess that in itself is healing.

I know I was terrified when my dd was first diagnosed, and we waited for those MRI's of her spine. She always had numbness and tingling in her hands in the morning,a nd nighttime headaches,,, Every year we wait for those MRI's and pray they are OK..

Thank G-d ..they are!

Anyway I just needed to say that .. and to send a(((hug))) to you too!

Oh, and by the way.. Your friends are surely welcome here.... lolol!!

debknechtel 02-02-2005 11:16 AM

Sweetspirit I have to thank you for posting and helping to put me at ease, I feel terrible that you are dealing with this horrible disease!!!

Val and Rosey thank you so much for all your thoughts and prayers also.

Well I'm back from the doctor and I walked in his office and he gave me the biggest hug ever!!! He said he was so excited to tell me everything was negative!!!! He had been so worried that a 38 year old with 3 small kids did not need this in her life. I still have to address my breathing issues with the neurologist but I am so happy right now...i feel like a huge weight has been lifted.

Sweetspirit you have been so wonderful to share your life with me...i appreciate it so much and I hope having this thread here will be helpful for some others who are facing this disease. We are still here to talk to you about anything you may be facing and I would love to see you on some of the other threads. I am sure you will find many of us are more than willing to offer friendship.

Thanks again everyone

Hugs
Debbie

janet 02-02-2005 11:29 AM

Praise God Deb! Now that the hard thing is over...lets all prayer for an easy fix for you.


FIX ME JESUS
***********
Oh yes, fix me, Jesus, fix me.
Fix me so that I can walk on
a little while longer.

Fix me so that I can pray on
just a little bit harder.

Fix me so that I can sing on
just a little bit louder.

Fix me so that I can go on despite the pain,
the fear, the doubt, and yes, the anger,
I ask not that you take this cross from me,
only that you give me the strength to continue carrying it onward 'til my dying day.

Oh, fix me, Jesus, fix me.

Abear 02-02-2005 11:30 AM


Hooray!!!! ^^ ^^



:party: :party:


Great news Deb!!! So, does this mean you can now go back to your martial arts??

I wil be praying that you get results just as good with the respiratory specialist!!!


:sparkle: :hearts: :cool:

debknechtel 02-02-2005 11:36 AM

Cindy

Yes he said I could return to martial arts just not to overdue it with the cardio as my breathing is still in question. I was so excited , because to go from 4 nights a week to nothing and taking away something I loved was causing me to have some depression. I am just so thankful right now!!!

Thanks Janet, I love the prayer and have copied it so I can look back on it.


Hugs
Debbie

stardust12 02-02-2005 04:17 PM

Debbie I'm so happy for you as I sit here laughing and crying I'm thanking God for you. I let out a big yes and Norm wanted to know what I was so happy about. I'm so glad you can go back to the martial arts. That is the best news I've heard all day!!!! Take care Deb and I'm still praying for you until you here from all of your doctors.

Love ya,
Rosey

debknechtel 02-02-2005 04:31 PM

Eva I pm'd you!!! Check your pm box...if you are not sure let me know and I will let you know how to find it!!!

Hugs
debbie

Lifestar 02-03-2005 01:04 PM

(((( HUGGS)))) Deb, I'm sooo very glad for you!! Now.. The hunt begins for answers, but at least you can put this chapter behind you , and release your tension doing the exercise you LOVE!! What a gift that is, huh?

Whatever support you need as you go through the next phase of your quest, I'm here for you girlfriend. I wish I could adopt you and bring you here for a week of dr apointments and quick answers...

Soooo.. How long till you get your black belt??

debknechtel 02-04-2005 08:36 AM

Quote:

I wish I could adopt you and bring you here for a week of dr apointments and quick answers...
Val wouldn't that be just the greatest!!!!You really are a true friend!!! Thank you so much for all your support!!!!


Quote:

Soooo.. How long till you get your black belt??
If I am lucky 4 to 5 years!!! The black belt grading is 5 1/2 hours long, you have to have 90 teaching hours, pass a written test and write a 30 page type written essay!!!! Yikes!!! I may never get that far. My oldest son is working towards his black belt. We have just started to work on his essay, he only has to do 15 pages because of his age but still is a lot!!!!


Hugs
Debbie


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