Thread: Syringomyelia
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Old 07-09-2007, 02:25 PM
debknechtel's Avatar
debknechtel debknechtel is offline
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Hi Megan

Sorry to hear you have been diagnosed with this SM. I don't have it myself but was tested for it. Where on your spine is the cyst??? Did you just find out that you had it or have you known for awhile? I will see if I can find the chairi newsletters I used to get...they had lots of info on it. Do you live in the states...I am not sure how insurance works there....here in Canada most are covered for health coverage.....when the doctors thought I had SM he figured it would be in my upper spine close to the brain and that I would have to have the decompression surgery. I have met a lady on a yahoo group who has had many surgeries from hers. Do you know what treatment they want for you? I am sorry I can't be more help but if you just need a friend I am here. Thinking of you


Hugs debbie
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