Thread: Fibromyaglia
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Old 07-10-2002, 02:55 PM
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Carie Carie is offline
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Join Date: Mar 2002
Location: Oklahoma City, OK
Posts: 48
Fibromyalgia

Well, I cannot believe what a discussion we all started! Talk about a lot of people being affected by Fibro and other related illnesses.

To ladyinmaille: Yes, a jacuzzi is very beneficial. We had a new home built last year and it came with a jacuzzi tub so I got a real blessing there! However, did you know that Conair (they make hair dryers, curling irons, and other like products) sells a device that you can put in your regular tub to turn it into a jacuzzi type tub? It's under $100 -- in fact I think I saw it advertised for about $50 -- and you put it in the tub just before you get in, turn it on, get in and enjoy! It's a portable device that you just remove when you're done with it. And yes, if you mention it to your doctor and he puts it in your records and/or writes a script for it it is indeed tax deductible.

SOMETHING IMPORTANT: Sorry to change tracks so quickly, but did you all know that even simple aspirin or Motrin that you buy at a store is tax-deductible? It all adds up towards the percentage of medical/dental/eye, etc. expenses you can use as a tax deduction. So save your WalMart receipts, ladies! Even contact lense supplies and simply anything (cough drops even) are in that category. Anything health-related, no matter how far-fetched it may seem.

Back on track: Yes, I did win my disability claim! But it took getting an attorney and almost 5 years to do it. Oklahoma is very backwoods about certain things. However, during the time my claim was pending I kept track of the Circuit Court decisions and Fibro and related illnesses have now been officially recognized as disabling illnesses. So there is now much more hope. But you definitely need an attorney. Paying the percentage is well worth it! Plus they are your attorney for the life of your claim, so if you ever have to be re-certified they're right there with you. (Unless, of course, you change attorneys.) But keep in touch with your attorney every few months via letter, documenting any medication changes, symptom changes, and things of that nature. This way, if and when you have to be re-certified, your attorney has up to date info on how you've done over the past few years or so since the initial award. The key is being persistent! Don't give up! That's what the Disability Board wants you to do. You will get upset and frustrated and angry at what they mail to you and the hoops they make you go through, but don't give up! You will win in the end, and it is worth it, believe me! Yes, I wish I could work at what I did before -- I loved it and miss it -- but I simply cannot. I even tried after I filed my claim in an attempt to "mitigate (minimize) my damages" but was too ill to work more than a very short period of time. (I would not do that again -- it can screw up your case, even though my intentions were good and no fraud was involved. Fortunately the judges realized why I did it -- I had worked for attorneys for nearly 20 years -- and so I was simply trying to do what I thought was right and to show I was not a dishonest person that just wanted to lay around and get paid for it.)

Now to caponata: So you live in France! Please do not think me rude, but are you French or an American living there? My husband and I had the pleasure of spending three years in Europe and thoroughly enjoyed it. We were about an hour from the French border near Saarbrucken, Germany (my husband is in the Air Force). What a beautiful place!

I pray for all of you people here that you will find the right treatment you need and get some relief from your pain and other disabling symptoms. It is a very frustrating thing because many times we don't look ill and I invariably get glared at when I pull into a handicapped spot at the store because I am just 47; look about 30 (just like my mom did for years!); and only limp occasionally due to left knee and hip problems. But we have to move past that and go on from there. People don't understand what's involved with Fibro and related illnesses until they or a loved one experiences them.

Please keep the questions and suggestions coming, and thanks so much for all the wonderful support and information! It helps me immensely and I hope it is that for you.



I love cats!!

Blessings and Prayers!!!

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Carie A., Oklahoma City