Hi, I am very sorry to hear about your husband's accident. I do understand your situation to a certain extent as I am the legal guardian of my mother and I care for her in my home. She has mild dementia and is mentally incomptetent at this point and no one can tell me if it will progress or not. There was a 2005 Commonweath Fund report that stated approx. 16 million U.S. residents are presently caregivers for sick or disabled family members and approx. 45 percent of the caregivers have one or more chronic health conditions themselves and have difficulty either obtaining insurance or being able to afford it. As my business is at my home I am very fortunate as I have always been self employed which allows me to still work from home and be able to care for my mother at the same time. However most Americans must give up employment so they can be at home to care for a family member. Because of this many Americans have lost group health insurance benefits that they would normally have if they were able to be employed or they have lost an income to afford an indvidual plan. The study suggests that because of this situation, it would be a benefit if caregivers could either be covered by medicare or be allowed to buy into medicare for affordable health care coverage. This is a wonderful suggestion but so far it has fallen on deaf ears in our goverment. If a person with a disability had to be cared for in a facility vs. being at home with a caregiver the costs would be astronomical and as no one could afford long term care the goverment would have to pick up the tab. To cover the costs of a caregiver's health insurance or to allow them to buy into at a discounted rate would benefit the goverment as it is small change to what they'd have to pay if no one was willing to be a caregiver at home. There are many disabled Americans in this country who do not have anyone to care for them or sadly do not have anyone willing to care for them or to be able to afford to care of them and they often become ward's of the state and the goverment ends up footing the bill. The goverment does at least realize this fact. I'm sure you have checked every source for health insurance but you may find these site useful as well and many people have gotten help from them.
www.usdoj.gov is the Americans with Disabilities website and contains alot of useful information.
www.aoa.gov is the website you can find The National Family Caregivers Support Program and you will find it by clicking on Elders and Family. This site has a wealth on information and links just for a caregiver. Your county should also have a dept. of social services you may check out also.
www.aarp.org also offers several insurance products for people from age 50-64. When I was appointed legal guardian of my mother I was handed a 20 page booklet that was suppose to tell me everything I would need. It was completely useless. There are so many programs available out there for people and NO ONE comes knocking on your door to tell you about them. They make you go looking for them and I could write an entire book on the programs I found. There are county, state and federal programs available for many things but most people have no clue they exist. There are programs also available thru the V.A. if someone was in the military and some of those programs are for the spouse as well including medical coverage. Most counties have a community developement program that grants money to people to make repairs on a home they own. You must keep the home a certain number of years such as 7 and if you sell it before then you simply pay the money back as there are never any payments or interest to make but if you do keep the home for the required length of time the loan becomes a grant and is considered paid. Not all programs are for the low income, many are also for middle income and disabled. A good friend of mine who is disabled with M.D. and a real estate agent was able to get a brand new roof thru this program. If you haven't already checked out these programs it is worth doing so. You may even stumble across health insurance by checking into programs such as these. Like I said no one offered me this information and it took a year of research and I was amazed at the things that are available. This is an area where our tax dollars go but no one tells us about it! There are always forms to fill out but it's worth it if you or your spouse are entitled to any benefits that may help you.