Hello,
My 9 yr old son was diagnosed right before his 4th birthday with a seizure disorder or Epilepsy. 50% of seizures the Doctors know how the seizures started (example: hitting head, car accident etc.). The other 50% the doctors have no answers for. There are several kinds of seizures.
I learned on the internet what the kind of seizure my son had is called (Absence). My son spaces out then closes his eyes. My son has been on medication since the first episode. He started off on Depakote sprinkles, then they later added Tegretol since he still was having what they call breakthrough seizures. After almost 3 yrs of breakthrough seizures another Doctor decided to switch his off Tegretol to Topamax. But he had a reaction to the Depakote/ Topamax mix and now is on Keppra and Topamax. He is still having breakthrough seizures but the seizures have changed to spacing out spells for a few minutes. Luckily we don't have to end up in the Emergency Room, like we used to with his first seizures.
We have been told that he may outgrow having seizures. And over the years, we've seen him have different kinds of seizures.
We just take everyday one day at a time. If he doesn't have a seizure, it was a good day. It's been hard letting him go to school and be without me, but I've given the Teacher and the school nurse information about him just incase they have to take him to the E.R. without me. On the medical history for my son, it includes: name etc, meds and amounts, past seizures.
(After every seizure, I add it to the list and also update any new meds or amounts). Despite the seizures, my son is a happy active boy.
I hope this helps.
If you like you can contact me too.
Kathy
AuntieKLE@cfl.rr.com 
